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Be understanding of children with hidden disabilities

We're both sitting in the living room with headphones on listening to music.  Trying to drown out the noise of our youngest son shouting the same thing over and over and over, while playing with his cars. Asking him to stop he just shouts louder and says no.    We've been to Portsmouth today he wanted to walk a particular way and did not want to go to the toilet, so started screaming and throwing himself on the floor.  People looking on assuming we are bad parents.  As I pick him up his feet swing wildly striking me in the shins while he puts his whole body weight down through his legs causing me to need to waddle. The screaming continues as we head into the toilets. To the naked eye you would think this is just a normal childhood tantrum. However this child is wearing a sunflower lanyard. This indicates that he has a hidden disability.  Yes James is verbal but he has autism, social and communication delay.  Mentally he is a 2 year old who struggles ma...

Fight injustice, but be you! You are what the world needs right now!

What an amazing lady.  An ex-colleague once commented fighting fire with fire was the way to deal with some people. Looking back, I have only found this approach to make a situation far worse. It is like adding fuel to a fire making it even bigger and causing problems you may not have had before speaking.  That is not to say we should always keep silent when being oppressed or when witnessing prejudice for example.    So many times you look back at a difficult situation and think, I wish I had said this or that!   If you are anything like me,  I often feel guilt for whatever my response is. I feel that I am somehow expected to respond in a particular way, make myself look tough for example. Reflection often helps me to see that often times I responded as I should have. I responded as me, for I cannot be someone else. One final thought.   It is good to celebrate the life of inspirational people but make sure you do not use it ...

On the cusp of greatness/ finding a brightside

I am on the cusp of greatness.  Not sure what that means or how I know that but I've got a good feeling. So I'm running with it.   Feel tired but can't sleep. My wife talked about our wedding vows today: For richer for poorer - we have always been poor. Still awaiting the richer bit. In sickness and in health -  lots of sickness and trouble but not the health part.  Based on the above we think we're due some of the flip side.  Well I've gone and done it, applied to be a freelance writer. My first step on the rung to becoming a writer.  I may not get it but I must keep going as there is so much uncertainty right now. My job is fixed contract that could end anytime.  Hey it sounds more like a mobile phone sim only deal than a job. A job that helps to provide for your family, keep a roof over your heads and help give you some pride in yourself. Just reflecting this year we have trodden an extremely hard road but I have met some amazing people because...

My Sails are Broken

 My Sails Are Broken (Written 11/06/2020) I am feeling so awful.  Today is a bad day.  Nothing is going right.  I am working but struggling to fit work around my family.  My eldest son is unwell, his epilepsy has been diagnosed as rare.   I am awaiting the professional investigation to be concluded, it is currently on hold.   Added to this all the stress has uncovered stuff I had hidden away when I was little.  It pains me to open up with you friends like this, but this blog enables me to be who I am and deal with the stuff that is going on in my head and life right now. I need to open up. I feel so dirty and horrible.  I was sexually abused a number of times in my childhood.  I don’t want to go into details right now as it is too painful.  I have sought support from a local rape and sexual abuse centre, sadly they are not taking on any new referrals. All this has left me feeling that I cannot possibly go on.  There i...

I don't want to be me

Why do I want to re-invent my story? Whoever you are, we all have a story to tell.  Story doesn't mean made up, it refers to our life.  The things that happened to us. Looking back I have always tried to be someone else in the hope that other people will like me.  However much I have tried not to I still end up following that program. It is as if I am not enough.   But what if? What if people actually like me as me? Sorry this could get very confusing.  I need to just be me without sugar coating it or apologising.  Am I not enough that I have to become James Bond?   Don't get me wrong escapism is great and there is a lot we can learn from these characters.  However sadly they all have their flaws. Bond has his love of women and desire to self destruct. Deep down bond is lonely. Yes he is macho but he doesn't have any friends or family. Friends get killed.  Just think if bond were real he might be wishing he were someone else too....

Looking up I matter

Looking up into the night sky I realise how small I am. How insignificant in the grand scheme of things.  But to someone I am their everything. We don't always know how others feel about us. Just know you are loved and you are beautiful.  Much love my friends

Opportunities amid the effects of the pandemic

We have heard it said many times that this pandemic is uncharted ground for everyone alive today. Amid all the doom and gloom of economic recessions, job losses and the possibility of a second wave, I wanted to shed a little bit of light to help you gain a bit more of a positive view point. It is easy to catastrophise right now but there are opportunities to be had as well.  More and more people are continuing to use bicycles to get around rather than their cars.  This has improved the environment, improves peoples health with more exercise and a reduction in air pollution.   This has led to an increased demand for bikes including electric bikes. This can lead to more jobs in this industry. People are realising that money and material possessions are not important.  The important things are family, friends and our communities. For too long our society has become fragmented, neighbours not knowing each other.  People are taking the time to check on their nei...